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Update from Kim’s Healing Journey


It’s been about two weeks since Kim returned home from Hawaii, and right now the focus is simple but vital: monitor, rest and recovery.


The medical team has made it clear that this is top priority. Kim’s body has been through a lot—her system responds intensely to procedures, and this has added layers of complexity that doctors are working to better control.


Further testing is scheduled for late August to evaluate her brain, vascular compressions, and jugular veins. The medical team is specifically monitoring Kim’s right jugular vein, which collapsed post surgically, to see if rest, time and reduced swelling will allow it to re-open. These results will help guide decisions about what comes next and when.


It’s not the update Kim hoped for. She had been holding onto the hope that this chapter might finally be closing—but for now, it’s a “wait and heal” season.


We continue to cheer her on and hold the vision of her receiving the very best care at every turn. 💜


#LymeDisease #HAE #HereditaryAngioedema #EhlersDanlosSyndrome #MCAS #MastCellActivationSyndrome #ChronicIllnessWarrior #MedicalJourney #VascularCompression #HealingTakesTime #InvisibleIllness #KeepGoingKim #OneDayAtATime

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