Kim's Medical Journey: Hope Lives Here

Thank you for your patience, giving us time to regroup, get more information from her surgical team, and assess the best way to continue assisting Kim and her family as they work through what is proving to be an “unusual” and complex recovery process . The medical team has clarified that this does not follow what they usually see in their patient population. They now state Kim’s recovery will be at least three times the timeline of most of their cases.  “The good thing is that things are changing and that gives us data, I don’t necessarily love how it is changing.” - said PA from the team.  Many of Kim’s pre-surgical symptoms have worsened. The team expected some of this, much of it was not. Due to these outcomes, Kim’s timeline for more surgical intervention may happen AS SOON AS JUNE in Hawaii where the two leading surgeons work together, Dr. Hepworth and Dr. Huey.  RE-CAP OF FIRST SURGERY : Left Juggular Vein reconstructed. The goal of this surgery was not to “fix h...

Taking a Pause – but please keep the support flowing 🙏 We’re stepping away from social media for the next week to give space for deeper healing and recovery. We’ll be back around the 15th with more updates after Kim’s next follow-up appointment. In the meantime, your support is still incredibly important. Please keep the donations coming and continue sharing Kim’s fundraiser! Every bit of help makes a difference. All the ways to send support are in the bio. Thank you for being part of this journey with us! 💛 #HealingJourney #Recovery #journeytoheal #medicaljourney #lymediseaseawareness #mastcell #eds #hae #advocate #jugularveindecompression #eaglessyndrome #lymedisease #medicaljourney

We made it to 75% towards our current goal! THANK YOU! Now let’s get Kim’s GoFundMe to 80% 💜 👊💕Kim has dedicated her life to fighting for others, advocating for those with rare diseases. Research funding has already been shockingly low and is now being slashed even more under the current administration. When funding disappears, so do answers, treatments, and hope for those who need it most. Kim still has a long road ahead—surgeries, recovery, and so much healing to do. She’s not just fighting for herself, but for all of her children who also live with Chronic Lyme disease and the cascade of other conditions that that stem from that. And true to who she is, she’s determined to keep healing so she can help others in the rare disease community. We’ve come so far, and we’re beyond grateful. But she still needs our support to get through this time. Every donation, every share, every ounce of love helps her keep going. Let’s push her past 80% today! 🚀💜 Links in bio! #HealingJourney #Re...